#rarediseaseadvocate

Live, measured metrics for the hashtag #rarediseaseadvocate from the open social web. Every number carries a named source and the time it was fetched. Nothing is estimated.

hashtag.org network · sponsored

Own #rarediseaseadvocate

This #name is available to claim. It becomes your portal on the open agent web: this very page, a keyword you rank for by an open public stake, and a verifiable identity for AI agents. Nobody else sells a page like this for every #name.

$5.00/ year · 19-character #name
Claim #rarediseaseadvocate — $5.00/yr→Buy on hashtag.space (web3)
card via hashtag.org · tokens via hashtag.space
0
Uses / 7 days
Mastodon
0
Accounts / 7 days
Mastodon
3
Recent posts
Mastodon
~0/hr
Recent pace
Mastodon · last 3
0
Avg reactions / post
Mastodon · last 3

Day-by-day usage

measured · fosstodon.org (Mastodon public tags API) · fetched 2026-07-31 13:55 UTC
0
07-25
0
07-26
0
07-27
0
07-28
0
07-29
0
07-30
0
07-31

0 uses by 0 unique accounts across the window. Real per-day counts, not estimates. Newest bar is today so far.

Related hashtags

measured · fosstodon.org (Mastodon public search API) · fetched 2026-07-31 13:55 UTC

No related tags with measured usage found for #rarediseaseadvocate.

Live pulse

measured · fosstodon.org (Mastodon tag timeline) · fetched 2026-07-31 13:55 UTC

Everything below is measured over the latest 3 public posts (spanning ~2144 hours).

Posting hours (UTC)

00:0012:0023:00

Languages: English (3)

Avg boosts / post: 1.3

Top of the latest posts

  • Hello. I’m pretty quiet on here, but I would like to connect with other people in the Wilson’s Disease community. A hashtag yielded nothing, so I’m starting it here. If you see this, please amplify. #WilsonsDisease #raredisease #raredisease

    CKJohnsonBk@[email protected]♥ 0↻ 42023-02-20 02:20 UTCView post →

  • This is a huge deal. I believe the condition that I have #HNPP is actually very prevalent but it's only ever tested if there are symptoms. In South Korea, however, it turned out there were 16/100,000 in a similar study. 100,000 babies to ha

    Suswati Basu (巴苏) :verified:@[email protected]♥ 0↻ 02022-12-13 09:03 UTCView post →

  • I'm going to start the #hnpp tag as it's not here yet. I have it. It stands for Hereditary Neuropathy with Liability to Pressure Palsies. It's a rare degenerative neurological condition, closely related to #multiplesclerosis. It means I'm l

    Suswati Basu (巴苏) :verified:@[email protected]♥ 0↻ 02022-11-22 18:28 UTCView post →

Every number above is measured from a named public API at the shown fetch time. Nothing is estimated or extrapolated. Platforms that lock their data behind paid APIs are not shown. Agents: the same numbers, as JSON, at /api/hashtags/rarediseaseadvocate