#EhlersDanlosSyndromes

Live, measured metrics for the hashtag #EhlersDanlosSyndromes from the open social web. Every number carries a named source and the time it was fetched. Nothing is estimated.

hashtag.org network · sponsored

Own #ehlersdanlossyndromes

This #name is available to claim. It becomes your portal on the open agent web: this very page, a keyword you rank for by an open public stake, and a verifiable identity for AI agents. Nobody else sells a page like this for every #name.

$5.00/ year · 21-character #name
Claim #ehlersdanlossyndromes — $5.00/yr→Buy on hashtag.space (web3)
card via hashtag.org · tokens via hashtag.space
0
Uses / 7 days
Mastodon
0
Accounts / 7 days
Mastodon
7
Recent posts
Mastodon
~0/hr
Recent pace
Mastodon · last 7
0
Avg reactions / post
Mastodon · last 7
—
Reddit posts / month
Reddit search
—
Open-web mentions
hashtag.org Firehose

Day-by-day usage

measured · fosstodon.org (Mastodon public tags API) · fetched 2026-08-07 21:09 UTC
0
08-01
0
08-02
0
08-03
0
08-04
0
08-05
0
08-06
0
08-07

0 uses by 0 unique accounts across the window. Real per-day counts, not estimates. Newest bar is today so far.

Related hashtags

measured · fosstodon.org (Mastodon public search API) · fetched 2026-08-07 21:09 UTC

No related tags with measured usage found for #ehlersdanlossyndromes.

Live pulse

measured · fosstodon.org (Mastodon tag timeline) · fetched 2026-08-07 21:09 UTC

Everything below is measured over the latest 7 public posts (spanning ~21204 hours).

Posting hours (UTC)

00:0012:0023:00

Languages: English (7)

Avg boosts / post: 4.3

Top of the latest posts

  • I'm finding perimenopause with MCAS, Ehlers-Danlos (just hypermobile), and AuDHD hard as fuck. Anyone got survival tips? #perimenopause #ActuallyAutistic #ADHD #MCAS #EhlersDanlosSyndromes

    Kelly's Shenanigans 🇨🇦@[email protected]♥ 0↻ 72025-07-02 13:41 UTCView post →

  • '#EhlersDanlosSyndromes and Related Disorders: Diagnostic Challenges and the Need for an Interdisciplinary Patient Care in Germany' - a Karger: #Dermatology #Research article on #ScienceOpen: https://www.scienceopen.com/document?vid=733d87e

    ScienceOpen@[email protected]♥ 0↻ 02025-05-05 13:51 UTCView post →

  • Is there anything about POTS, MCAS, EDS or chronic illness in general that you’ve always wanted to know? Something that you don’t think gets discussed enough? I’m building out a series of posts on these difficult conditions - and open to an

    Broadwaybabyto@[email protected]♥ 0↻ 142024-09-25 02:45 UTCView post →

#ehlersdanlossyndromes across platforms

every network with a public tag surface

Follow #ehlersdanlossyndromes straight to each platform’s own tag page. Where a platform publishes open data we measure it above; the rest lock their numbers behind paid APIs, so we link rather than guess.

X (Twitter) ↗Instagram ↗TikTok ↗Facebook ↗LinkedIn ↗YouTube ↗Threads ↗Bluesky ↗Mastodon ↗Reddit ↗Pinterest ↗Tumblr ↗

Every number above is measured from a named public API at the shown fetch time. Nothing is estimated or extrapolated. Platforms that lock their data behind paid APIs are not shown. Agents: the same numbers, as JSON, at /api/hashtags/ehlersdanlossyndromes