#enfermedadesraras
Live, measured metrics for the hashtag #enfermedadesraras from the open social web. Every number carries a named source and the time it was fetched. Nothing is estimated.
Own #enfermedadesraras
This #name is available to claim. It becomes your portal on the open agent web: this very page, a keyword you rank for by an open public stake, and a verifiable identity for AI agents. Nobody else sells a page like this for every #name.
Day-by-day usage
measured · fosstodon.org (Mastodon public tags API) · fetched 2026-08-09 02:57 UTC0 uses by 0 unique accounts across the window. Real per-day counts, not estimates. Newest bar is today so far.
Related hashtags
measured · fosstodon.org (Mastodon public search API) · fetched 2026-08-09 02:57 UTCNo related tags with measured usage found for #enfermedadesraras.
Live pulse
measured · fosstodon.org (Mastodon tag timeline) · fetched 2026-08-09 02:57 UTCEverything below is measured over the latest 40 public posts (spanning ~8071 hours).
Posting hours (UTC) — busiest: 17:00
Languages: Spanish (38) · English (2)
Avg boosts / post: 0.2
Top of the latest posts
Bueno, me percato de que me presenté en el #fediverso como quién soy, pero aún no os compartí, ni #escritura, ni #fotografía. A ver si me pongo al día.😬 Para empezar, creo que sorprendentemente, lo haré con la visibilización, en este caso,
La epidermólisis bullosa, o piel de mariposa, requiere cuidados constantes frente al dolor, las infecciones y la cicatrización. Existe una terapia ya aprobada en la UE (Vyjuvek), pero su acceso en España aún no está claro. #Difunde #Enferme
Hoy sale un nuevo artículo en @theconversationes de la serie que promovemos desde @raras_csic sobre las #enfermedadesraras esta vez sobre las enfermedades mitocondriales, y lo escribe Carlos Santos, profesor de la UPO y @cabd_upo_csic @cibe
#enfermedadesraras across platforms
every network with a public tag surfaceFollow #enfermedadesraras straight to each platform’s own tag page. Where a platform publishes open data we measure it above; the rest lock their numbers behind paid APIs, so we link rather than guess.
Every number above is measured from a named public API at the shown fetch time. Nothing is estimated or extrapolated. Platforms that lock their data behind paid APIs are not shown. Agents: the same numbers, as JSON, at /api/hashtags/enfermedadesraras