#heds
Live, measured metrics for the hashtag #heds from the open social web. Every number carries a named source and the time it was fetched. Nothing is estimated.
Own #heds
This #name is available to claim. It becomes your portal on the open agent web: this very page, a keyword you rank for by an open public stake, and a verifiable identity for AI agents. Nobody else sells a page like this for every #name.
Day-by-day usage
measured · fosstodon.org (Mastodon public tags API) · fetched 2026-09-28 19:22 UTC0 uses by 0 unique accounts across the window. Real per-day counts, not estimates. Newest bar is today so far.
Related hashtags
measured · fosstodon.org (Mastodon public search API) · fetched 2026-09-28 19:22 UTCLive pulse
measured · fosstodon.org (Mastodon tag timeline) · fetched 2026-09-28 19:22 UTCEverything below is measured over the latest 40 public posts (spanning ~4841 hours).
Posting hours (UTC) — busiest: 04:00
Languages: English (36) · German (1) · French (1)
Avg boosts / post: 2.6
Top of the latest posts
Have you ever wondered about rheumatoid arthritis but were afraid to ask? Do you want to know my story? #ChronicIllness #ChronicPain First: RA is an autoimmune disorder where the immune system attacks healthy joint tissue. It’s debilitating
Today is #MEAwarenessDay! The Swedish study finding 1 in 5 people with hypermobile Ehlers Danlos Syndrome #hEDS or hypermobility spectrum disorder #HSD (which the EDS Society found are the same) have myalgic encephalomyelitis/chronic fatigu
@pixelate yeah, as much as this irks me, I agree. I'm not at all a programmer or coder, just a disabled person with mobility issues that basically make touchscreen use impossible. Part of the issue for me is, even as there are organizations
What “heds” means
WikipediaEhlers–Danlos syndromes (EDS) are a group of 13 genetic connective tissue disorders. Symptoms often include loose joints; joint pain; stretchy, velvety skin; and abnormal scar formation. These may be noticed at birth or in early childhood. Complications may include aortic dissection, joint dislocations, scoliosis, chronic pain, or early osteoarthritis. The existing classification was last updated in 2017, when a number of rarer forms of EDS were added.
“Ehlers–Danlos syndrome” on Wikipedia (CC BY-SA) →#heds across platforms
every network with a public tag surfaceFollow #heds straight to each platform’s own tag page. Where a platform publishes open data we measure it above; the rest lock their numbers behind paid APIs, so we link rather than guess.
Every number above is measured from a named public API at the shown fetch time. Nothing is estimated or extrapolated. Platforms that lock their data behind paid APIs are not shown. Agents: the same numbers, as JSON, at /api/hashtags/heds