#maladiesrares

Live, measured metrics for the hashtag #maladiesrares from the open social web. Every number carries a named source and the time it was fetched. Nothing is estimated.

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This #name is available to claim. It becomes your portal on the open agent web: this very page, a keyword you rank for by an open public stake, and a verifiable identity for AI agents. Nobody else sells a page like this for every #name.

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3
Uses / 7 days
Mastodon
3
Accounts / 7 days
Mastodon
40
Recent posts
Mastodon
~0/hr
Recent pace
Mastodon · last 40
0
Avg reactions / post
Mastodon · last 40
—
Reddit posts / month
Reddit search
—
Open-web mentions
hashtag.org Firehose

Day-by-day usage

measured · mastodon.social (Mastodon public tags API) · fetched 2026-10-19 12:47 UTC
1
10-13
0
10-14
1
10-15
1
10-16
0
10-17
0
10-18
0
10-19

3 uses by 3 unique accounts across the window. Real per-day counts, not estimates. Newest bar is today so far.

Related hashtags

measured · mastodon.social (Mastodon public search API) · fetched 2026-10-19 12:47 UTC

No related tags with measured usage found for #maladiesrares.

Live pulse

measured · mastodon.social (Mastodon tag timeline) · fetched 2026-10-19 12:47 UTC

Everything below is measured over the latest 40 public posts (spanning ~7306 hours).

Posting hours (UTC) — busiest: 09:00

00:0012:0023:00

Languages: French (40)

Avg boosts / post: 0

Top of the latest posts

  • 📍 Étude AP-HM sur la transition pédiatrie ➝ soins adultes pour les jeunes atteints de maladies endocriniennes rares. 🩺 Consultations conjointes pédiatres/adultes 📊 96 % poursuivent leur suivi 🧠 Lieu ressource : l’APPART à la Timone 🔗 h

    AP-HM - CHU de Marseille@aphm_chu_marseille♥ 1↻ 02025-12-16 09:16 UTCView post →

  • 💙📚 Parler de la maladie avec des mots d’enfant, c’est possible ! Comment expliquer l’aplasie médullaire à ses camarades ? Comment parler des effets secondaires d’un traitement et du regard des autres ? @HPN_AM_FRANCE vous propose 1 BD des

    HPN France-Aplasie Médullaire@HPN_AM_FRANCE♥ 0↻ 02026-10-16 19:39 UTCView post →

  • 1/3 #MaladiesRares 🧬 Épilepsie : rapprocher la recherche des soins. Le 3 juillet 2026, 58 cliniciens, chercheurs, étudiants et ingénieurs ont participé à Marseille à la 2e Journée de Neurosciences translationnelles sur l’Épilepsie. Portée

    AP-HM - CHU de Marseille@aphm_chu_marseille♥ 0↻ 02026-10-15 07:00 UTCView post →

#maladiesrares across platforms

every network with a public tag surface

Follow #maladiesrares straight to each platform’s own tag page. Where a platform publishes open data we measure it above; the rest lock their numbers behind paid APIs, so we link rather than guess.

X (Twitter) ↗Instagram ↗TikTok ↗Facebook ↗LinkedIn ↗YouTube ↗Threads ↗Bluesky ↗Mastodon ↗Reddit ↗Pinterest ↗Tumblr ↗

Every number above is measured from a named public API at the shown fetch time. Nothing is estimated or extrapolated. Platforms that lock their data behind paid APIs are not shown. Agents: the same numbers, as JSON, at /api/hashtags/maladiesrares