#marfans

Live, measured metrics for the hashtag #marfans from the open social web. Every number carries a named source and the time it was fetched. Nothing is estimated.

hashtag.org network · sponsored

Own #marfans

This #name is available to claim. It becomes your portal on the open agent web: this very page, a keyword you rank for by an open public stake, and a verifiable identity for AI agents. Nobody else sells a page like this for every #name.

$240.06/ year · 7-character #name
Claim #marfans$240.06/yrBuy on hashtag.space (web3)
card via hashtag.org · tokens via hashtag.space
0
Uses / 7 days
Mastodon
0
Accounts / 7 days
Mastodon
3
Recent posts
Mastodon
~0/hr
Recent pace
Mastodon · last 3
0
Avg reactions / post
Mastodon · last 3
Reddit posts / month
Reddit search
Open-web mentions
hashtag.org Firehose

Day-by-day usage

measured · fosstodon.org (Mastodon public tags API) · fetched 2026-09-10 18:04 UTC
0
09-04
0
09-05
0
09-06
0
09-07
0
09-08
0
09-09
0
09-10

0 uses by 0 unique accounts across the window. Real per-day counts, not estimates. Newest bar is today so far.

Related hashtags

measured · fosstodon.org (Mastodon public search API) · fetched 2026-09-10 18:04 UTC

Live pulse

measured · fosstodon.org (Mastodon tag timeline) · fetched 2026-09-10 18:04 UTC

Everything below is measured over the latest 3 public posts (spanning ~30480 hours).

Posting hours (UTC)

00:0012:0023:00

Languages: English (3)

Avg boosts / post: 1

Top of the latest posts

  • “There appears to be a bidirectional relationship between connective tissue disorders and ME/CFS: underlying connective tissue abnormalities may increase susceptibility to ME/CFS, while #MECFS may aggravate connective tissue pathology.” #pw

    Emily Johnson@[email protected]032026-05-14 19:51 UTCView post →
  • @KellyKellyKelly I've have heard it's possible to also have #Marfans with shorter stature although minority. My eldest was thoroughly checked dx EDS in an hour's app with the top Hypermobility CTD rheumatologist in the UK prof Grahame becau

    Bendy~HEDS & Co 🥄👩🏻‍🦼😷@[email protected]002022-12-26 12:07 UTCView post →
  • This is a call to #MedMastodon for assistance! My team is looking to recruit patients with #Marfans or #LoeysDietz for a simple survey (~20 min) about their #gynecologic and #reproductive health. Please pass along to relevant physicians/pat

    Elliott Richards MD PhD@[email protected]002022-11-21 20:02 UTCView post →

What “marfans” means

Wikipedia

Marfan syndrome (MFS) is a multi-systemic genetic disorder that affects the connective tissue. People with the condition are often tall and thin, with long arms, legs, fingers, and toes. They also typically have exceptionally flexible joints and abnormally curved spines. The most serious complications involve the heart and aorta, with an increased risk of mitral valve prolapse and aortic aneurysm. The lungs, eyes, bones, and the covering of the spinal cord are also commonly affected. The severit

Marfan syndrome” on Wikipedia (CC BY-SA) →

#marfans across platforms

every network with a public tag surface

Follow #marfans straight to each platform’s own tag page. Where a platform publishes open data we measure it above; the rest lock their numbers behind paid APIs, so we link rather than guess.

Every number above is measured from a named public API at the shown fetch time. Nothing is estimated or extrapolated. Platforms that lock their data behind paid APIs are not shown. Agents: the same numbers, as JSON, at /api/hashtags/marfans