#orphandrugs

Live, measured metrics for the hashtag #orphandrugs from the open social web. Every number carries a named source and the time it was fetched. Nothing is estimated.

hashtag.org network · sponsored

Own #orphandrugs

This #name is available to claim. It becomes your portal on the open agent web: this very page, a keyword you rank for by an open public stake, and a verifiable identity for AI agents. Nobody else sells a page like this for every #name.

$10.85/ year · 11-character #name
Claim #orphandrugs — $10.85/yr→
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card via hashtag.org · tokens via hashtag.space
0
Uses / 7 days
Mastodon
0
Accounts / 7 days
Mastodon
13
Recent posts
Mastodon
~0/hr
Recent pace
Mastodon · last 13
0
Avg reactions / post
Mastodon · last 13

Day-by-day usage

measured · fosstodon.org (Mastodon public tags API) · fetched 2026-07-27 04:52 UTC
0
07-21
0
07-22
0
07-23
0
07-24
0
07-25
0
07-26
0
07-27

0 uses by 0 unique accounts across the window. Real per-day counts, not estimates. Newest bar is today so far.

Related hashtags

measured · fosstodon.org (Mastodon public search API) · fetched 2026-07-27 04:52 UTC

No related tags with measured usage found for #orphandrugs.

Live pulse

measured · fosstodon.org (Mastodon tag timeline) · fetched 2026-07-27 04:52 UTC

Everything below is measured over the latest 13 public posts (spanning ~22094 hours).

Posting hours (UTC) — busiest: 10:00

00:0012:0023:00

Languages: German (9) · English (4)

Avg boosts / post: 0.6

Top of the latest posts

  • Forschungsanreize für #OrphanDrugs funktionieren nicht wie erhofft. Um die Situation für Menschen mit seltenen Erkrankungen zu verbessern, wären vermutlich grundlegende Neuregelungen erforderlich: bei der #Zulassung und der #Nutzenbewertung

    Gute Pillen – Schlechte Pillen@[email protected]♥ 0↻ 02025-05-24 08:00 UTCView post →

  • Zum #TagDerSeltenenErkrankungen möchten wir noch mal auf eine Publikation vom Januar hinweisen: Orphan Drugs: Stärkere Orientierung am medizinischen Bedarf notwendig Ein Team aus dem IQWiG hat Nutzenbewertungen von Orphan Drugs aus gut 10 J

    IQWiG@[email protected]♥ 0↻ 12025-02-28 10:07 UTCView post →

  • Unser #Jahresbericht 2023 ist da! 🤩 Hier unser fröhliches Leitungsteam von Seite 39. Alle anderen Seiten gibt's unter https://www.iqwig.de/presse/pressemitteilungen/pressemitteilungen-detailseite_122240.html -> PDF zum Download. Die diejäh

    IQWiG@[email protected]♥ 0↻ 02024-07-12 14:01 UTCView post →

Every number above is measured from a named public API at the shown fetch time. Nothing is estimated or extrapolated. Platforms that lock their data behind paid APIs are not shown. Agents: the same numbers, as JSON, at /api/hashtags/orphandrugs