#raredeseaseday
Live, measured metrics for the hashtag #raredeseaseday from the open social web. Every number carries a named source and the time it was fetched. Nothing is estimated.
Own #raredeseaseday
This #name is available to claim. It becomes your portal on the open agent web: this very page, a keyword you rank for by an open public stake, and a verifiable identity for AI agents. Nobody else sells a page like this for every #name.
Day-by-day usage
measured · fosstodon.org (Mastodon public tags API) · fetched 2026-08-18 11:14 UTC0 uses by 0 unique accounts across the window. Real per-day counts, not estimates. Newest bar is today so far.
Related hashtags
measured · fosstodon.org (Mastodon public search API) · fetched 2026-08-18 11:14 UTCNo related tags with measured usage found for #raredeseaseday.
Live pulse
measured · fosstodon.org (Mastodon tag timeline) · fetched 2026-08-18 11:14 UTCEverything below is measured over the latest 3 public posts (spanning ~17518 hours).
Posting hours (UTC)
Languages: German (3)
Avg boosts / post: 2.3
Top of the latest posts
Der 28.02. ist #RareDeseaseDay für mehr Sichtbarkeit für Menschen mit seltenen Erkrankungen. Das Anthropologie-Team unserer #Naturwissenschaften_DAI trägt mit historischer Perspektive dazu bei - und präsentiert mit dem Digital Atlas of Anci
📣 Neue Podcast-Folge: Unser Immunsystem: Superheld mit Schwächen? Warum sind manche Menschen ständig krank, während andere kaum Infekte haben? Prof. Dr. Bodo Grimbacher gibt Einblicke in die Immunabwehr, Autoimmunerkrankungen und die Rolle
29. Februar ist der Tag der seltenen Erkrankungen. Dario, der Sohn von Freunden, ist an Morbus Sandhoff erkrankt. Wir gründeten damals die Selbsthilfegruppe Hand in Hand gegen Tay-Sachs und Sandhoff. Hier ein Film über die Krankheit, die Fa
#raredeseaseday across platforms
every network with a public tag surfaceFollow #raredeseaseday straight to each platform’s own tag page. Where a platform publishes open data we measure it above; the rest lock their numbers behind paid APIs, so we link rather than guess.
Every number above is measured from a named public API at the shown fetch time. Nothing is estimated or extrapolated. Platforms that lock their data behind paid APIs are not shown. Agents: the same numbers, as JSON, at /api/hashtags/raredeseaseday