#rarediseasecommunity

Live, measured metrics for the hashtag #rarediseasecommunity from the open social web. Every number carries a named source and the time it was fetched. Nothing is estimated.

hashtag.org network · sponsored

Own #rarediseasecommunity

This #name is available to claim. It becomes your portal on the open agent web: this very page, a keyword you rank for by an open public stake, and a verifiable identity for AI agents. Nobody else sells a page like this for every #name.

$5.00/ year · 20-character #name
Claim #rarediseasecommunity — $5.00/yr→Buy on hashtag.space (web3)
card via hashtag.org · tokens via hashtag.space
0
Uses / 7 days
Mastodon
0
Accounts / 7 days
Mastodon
5
Recent posts
Mastodon
~0/hr
Recent pace
Mastodon · last 5
0.2
Avg reactions / post
Mastodon · last 5

Day-by-day usage

measured · fosstodon.org (Mastodon public tags API) · fetched 2026-07-31 16:44 UTC
0
07-25
0
07-26
0
07-27
0
07-28
0
07-29
0
07-30
0
07-31

0 uses by 0 unique accounts across the window. Real per-day counts, not estimates. Newest bar is today so far.

Related hashtags

measured · fosstodon.org (Mastodon public search API) · fetched 2026-07-31 16:44 UTC

No related tags with measured usage found for #rarediseasecommunity.

Live pulse

measured · fosstodon.org (Mastodon tag timeline) · fetched 2026-07-31 16:44 UTC

Everything below is measured over the latest 5 public posts (spanning ~25415 hours).

Posting hours (UTC)

00:0012:0023:00

Languages: English (5)

Avg boosts / post: 0.4

Top of the latest posts

  • What is Palynziq? And why does it have so many names? PAL. PEG-PAL. Pegvaliase. Palynziq. If you’ve ever felt confused by PKU treatment names — you’re not alone. They all describe the same enzyme-based treatment, just from different angles.

    poconnor@[email protected]♥ 1↻ 22026-01-23 09:16 UTCView post →

  • Annual greetings to those celebrating Easter on this day but have dietary restrictions regarding chocolate. Hope you had a good day and satisfied your sweet tooth in the way that suits you.🥚🐣 #DietaryRestriction #RareDisease #RareDiseaseC

    Mark Maguire@[email protected]♥ 0↻ 02024-03-31 21:50 UTCView post →

  • Hello 👋 Just checking, do we have an Rare Disease community here on Mastodon? #RareDisease #RareDiseaseIreland #RareDiseaseCommunity #UsherSyndrome

    Usher Syndrome Ireland@[email protected]♥ 0↻ 02023-07-16 16:14 UTCView post →

Every number above is measured from a named public API at the shown fetch time. Nothing is estimated or extrapolated. Platforms that lock their data behind paid APIs are not shown. Agents: the same numbers, as JSON, at /api/hashtags/rarediseasecommunity