#RareDiseaseDay

Live, measured metrics for the hashtag #RareDiseaseDay from the open social web. Every number carries a named source and the time it was fetched. Nothing is estimated.

hashtag.org network · sponsored

Own #rarediseaseday

This #name is available to claim. It becomes your portal on the open agent web: this very page, a keyword you rank for by an open public stake, and a verifiable identity for AI agents. Nobody else sells a page like this for every #name.

$5.00/ year · 14-character #name
Claim #rarediseaseday$5.00/yrBuy on hashtag.space (web3)
card via hashtag.org · tokens via hashtag.space
0
Uses / 7 days
Mastodon
0
Accounts / 7 days
Mastodon
40
Recent posts
Mastodon
~0/hr
Recent pace
Mastodon · last 40
0.1
Avg reactions / post
Mastodon · last 40

Day-by-day usage

measured · fosstodon.org (Mastodon public tags API) · fetched 2026-07-30 08:04 UTC
0
07-24
0
07-25
0
07-26
0
07-27
0
07-28
0
07-29
0
07-30

0 uses by 0 unique accounts across the window. Real per-day counts, not estimates. Newest bar is today so far.

Related hashtags

measured · fosstodon.org (Mastodon public search API) · fetched 2026-07-30 08:04 UTC

Live pulse

measured · fosstodon.org (Mastodon tag timeline) · fetched 2026-07-30 08:04 UTC

Everything below is measured over the latest 40 public posts (spanning ~17545 hours).

Posting hours (UTC) — busiest: 11:00

00:0012:0023:00

Languages: English (27) · German (10) · French (3)

Avg boosts / post: 1.2

Top of the latest posts

  • My webinar on making printed and digital content #accessibility is now available as a standalone video with descriptions and captions in: English, Ukrainian, Malay, Arabic, Czech, German, French, Hindi, Italian, Japanese, Portuguese, Serbia

    James Buller@[email protected]122025-11-03 00:09 UTCView post →
  • In Deutschland leben etwa 4 Millionen Menschen mit einer seltenen Erkrankung. Ihnen gilt nicht nur heute am #RareDiseaseDay unsere Aufmerksamkeit: Das Berliner Centrum für Seltene Erkrankungen der #CharitéBerlin bietet Betroffenen eine Anla

    Charité Berlin@[email protected]192025-02-28 08:31 UTCView post →
  • “The growing role of parents as advocates and innovators, the case for a national rare disease champion, and why a more joined-up approach across government, regulators, industry and charities is essential to delivering faster diagnoses and

    clarkiestar@[email protected]002026-03-01 22:07 UTCView post →

Every number above is measured from a named public API at the shown fetch time. Nothing is estimated or extrapolated. Platforms that lock their data behind paid APIs are not shown. Agents: the same numbers, as JSON, at /api/hashtags/rarediseaseday