#rarepatientvoice

Live, measured metrics for the hashtag #rarepatientvoice from the open social web. Every number carries a named source and the time it was fetched. Nothing is estimated.

hashtag.org network · sponsored

Own #rarepatientvoice

This #name is available to claim. It becomes your portal on the open agent web: this very page, a keyword you rank for by an open public stake, and a verifiable identity for AI agents. Nobody else sells a page like this for every #name.

$5.00/ year · 16-character #name
Claim #rarepatientvoice — $5.00/yr→Buy on hashtag.space (web3)
card via hashtag.org · tokens via hashtag.space
3
Uses / 7 days
Mastodon
3
Accounts / 7 days
Mastodon
33
Recent posts
Mastodon
~0/hr
Recent pace
Mastodon · last 33
0
Avg reactions / post
Mastodon · last 33

Day-by-day usage

measured · fosstodon.org (Mastodon public tags API) · fetched 2026-07-29 22:43 UTC
0
07-23
3
07-24
0
07-25
0
07-26
0
07-27
0
07-28
0
07-29

3 uses by 3 unique accounts across the window. Real per-day counts, not estimates. Newest bar is today so far.

Related hashtags

measured · fosstodon.org (Mastodon public search API) · fetched 2026-07-29 22:43 UTC

No related tags with measured usage found for #rarepatientvoice.

Live pulse

measured · fosstodon.org (Mastodon tag timeline) · fetched 2026-07-29 22:43 UTC

Everything below is measured over the latest 33 public posts (spanning ~937 hours).

Posting hours (UTC) — busiest: 16:00

00:0012:0023:00

Languages: English (33)

Avg boosts / post: 0.2

Used together with

#raredisease ×33

Top of the latest posts

  • 🔬 Paid Research Opportunity: Wet Macular Degeneration and/or Diabetic Macular Edema | By Dr. Kirk Adams | Courtesy of the PWD Media Co-op https://rarepatientvoice.com/rp/DrKirk Rare Patient Voice wants to hear from you — they'll pay for yo

    Access Information News ♿@[email protected]♥ 0↻ 02026-07-24 17:15 UTCView post →

  • 🔬 Paid Research Opportunity: Wet Macular Degeneration and/or Diabetic Macular Edema | By Dr. Kirk Adams | Courtesy of the PWD Media Co-op https://rarepatientvoice.com/rp/DrKirk Rare Patient Voice wants to hear from you — they'll pay for yo

    Dr. Kirk Adams@[email protected]♥ 0↻ 02026-07-24 17:15 UTCView post →

  • 🔬 Paid Research Opportunity: Wet Macular Degeneration and/or Diabetic Macular Edema | By Dr. Kirk Adams | Courtesy of the PWD Media Co-op https://rarepatientvoice.com/rp/DrKirk Rare Patient Voice wants to hear from you — they'll pay for yo

    Top Tech Tidbits ♿@[email protected]♥ 0↻ 02026-07-24 17:15 UTCView post →

Every number above is measured from a named public API at the shown fetch time. Nothing is estimated or extrapolated. Platforms that lock their data behind paid APIs are not shown. Agents: the same numbers, as JSON, at /api/hashtags/rarepatientvoice