#Sandhoff
Live, measured metrics for the hashtag #Sandhoff from the open social web. Every number carries a named source and the time it was fetched. Nothing is estimated.
Own #sandhoff
This #name is available to claim. It becomes your portal on the open agent web: this very page, a keyword you rank for by an open public stake, and a verifiable identity for AI agents. Nobody else sells a page like this for every #name.
Day-by-day usage
measured · fosstodon.org (Mastodon public tags API) · fetched 2026-08-18 12:15 UTC0 uses by 0 unique accounts across the window. Real per-day counts, not estimates. Newest bar is today so far.
Related hashtags
measured · fosstodon.org (Mastodon public search API) · fetched 2026-08-18 12:15 UTCLive pulse
measured · fosstodon.org (Mastodon tag timeline) · fetched 2026-08-18 12:15 UTCEverything below is measured over the latest 4 public posts (spanning ~14029 hours).
Posting hours (UTC)
Languages: German (4)
Avg boosts / post: 0.8
Top of the latest posts
Familienkonferenz #TaySachs, #Sandhoff und #GM1 für den deutschsprachigen Raum. Emotionale Achterbahnfahrt, tonnenweise Infos, Austausch von Betroffenen und Familien. Und ich darf Technik machen. https://tay-sachs-sandhoff.de/ #SelteneKrank
29. Februar ist der Tag der seltenen Erkrankungen. Dario, der Sohn von Freunden, ist an Morbus Sandhoff erkrankt. Wir gründeten damals die Selbsthilfegruppe Hand in Hand gegen Tay-Sachs und Sandhoff. Hier ein Film über die Krankheit, die Fa
Anstrengendes, trauriges, aber auch interessantes und schönes Wochenende bei der deutschen Familienkonferenz von "Hand in Hand gegen Tay-Sachs, Sandhoff und GM2" in Würzburg. Ich darf wieder die Technik machen. #TaySachs #Sandhoff #GM2 #Sel
What “sandhoff” means
WikipediaSandhoff disease is a lysosomal genetic, lipid storage disorder caused by the inherited deficiency to create functional beta-hexosaminidases A and B. These catabolic enzymes are needed to degrade the neuronal membrane components, ganglioside GM2, its derivative GA2, the glycolipid globoside in visceral tissues, and some oligosaccharides. Accumulation of these metabolites leads to a progressive destruction of the central nervous system and eventually to death. The rare autosomal recessive neurode
“Sandhoff disease” on Wikipedia (CC BY-SA) →#sandhoff across platforms
every network with a public tag surfaceFollow #sandhoff straight to each platform’s own tag page. Where a platform publishes open data we measure it above; the rest lock their numbers behind paid APIs, so we link rather than guess.
Every number above is measured from a named public API at the shown fetch time. Nothing is estimated or extrapolated. Platforms that lock their data behind paid APIs are not shown. Agents: the same numbers, as JSON, at /api/hashtags/sandhoff