#taysachssandhoff

Live, measured metrics for the hashtag #taysachssandhoff from the open social web. Every number carries a named source and the time it was fetched. Nothing is estimated.

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0
Uses / 7 days
Mastodon
0
Accounts / 7 days
Mastodon
2
Recent posts
Mastodon
~0/hr
Recent pace
Mastodon · last 2
0
Avg reactions / post
Mastodon · last 2
—
Reddit posts / month
Reddit search
—
Open-web mentions
hashtag.org Firehose

Day-by-day usage

measured · fosstodon.org (Mastodon public tags API) · fetched 2026-08-18 12:17 UTC
0
08-12
0
08-13
0
08-14
0
08-15
0
08-16
0
08-17
0
08-18

0 uses by 0 unique accounts across the window. Real per-day counts, not estimates. Newest bar is today so far.

Related hashtags

measured · fosstodon.org (Mastodon public search API) · fetched 2026-08-18 12:17 UTC

No related tags with measured usage found for #taysachssandhoff.

Live pulse

measured · fosstodon.org (Mastodon tag timeline) · fetched 2026-08-18 12:17 UTC

Everything below is measured over the latest 2 public posts (spanning ~5247 hours).

Posting hours (UTC)

00:0012:0023:00

Languages: German (2)

Avg boosts / post: 0.5

Top of the latest posts

  • Familienkonferenz #TaySachs, #Sandhoff und #GM1 für den deutschsprachigen Raum. Emotionale Achterbahnfahrt, tonnenweise Infos, Austausch von Betroffenen und Familien. Und ich darf Technik machen. https://tay-sachs-sandhoff.de/ #SelteneKrank

    HerrThees 🌈@[email protected]♥ 0↻ 02024-10-05 10:50 UTCView post →

  • 29. Februar ist der Tag der seltenen Erkrankungen. Dario, der Sohn von Freunden, ist an Morbus Sandhoff erkrankt. Wir gründeten damals die Selbsthilfegruppe Hand in Hand gegen Tay-Sachs und Sandhoff. Hier ein Film über die Krankheit, die Fa

    HerrThees 🌈@[email protected]♥ 0↻ 12024-02-29 19:52 UTCView post →

#taysachssandhoff across platforms

every network with a public tag surface

Follow #taysachssandhoff straight to each platform’s own tag page. Where a platform publishes open data we measure it above; the rest lock their numbers behind paid APIs, so we link rather than guess.

X (Twitter) ↗Instagram ↗TikTok ↗Facebook ↗LinkedIn ↗YouTube ↗Threads ↗Bluesky ↗Mastodon ↗Reddit ↗Pinterest ↗Tumblr ↗

Every number above is measured from a named public API at the shown fetch time. Nothing is estimated or extrapolated. Platforms that lock their data behind paid APIs are not shown. Agents: the same numbers, as JSON, at /api/hashtags/taysachssandhoff