#rarediseaseawareness
Live, measured metrics for the hashtag #rarediseaseawareness from the open social web. Every number carries a named source and the time it was fetched. Nothing is estimated.
Own #rarediseaseawareness
This #name is available to claim. It becomes your portal on the open agent web: this very page, a keyword you rank for by an open public stake, and a verifiable identity for AI agents. Nobody else sells a page like this for every #name.
Day-by-day usage
measured · mas.to (Mastodon public tags API) · fetched 2026-10-10 20:40 UTC0 uses by 0 unique accounts across the window. Real per-day counts, not estimates. Newest bar is today so far.
Related hashtags
measured · mas.to (Mastodon public search API) · fetched 2026-10-10 20:40 UTCNo related tags with measured usage found for #rarediseaseawareness.
Live pulse
measured · mas.to (Mastodon tag timeline) · fetched 2026-10-10 20:40 UTCEverything below is measured over the latest 7 public posts (spanning ~17282 hours).
Posting hours (UTC)
Languages: English (6) · French (1)
Avg boosts / post: 0.4
Top of the latest posts
Positively Rare is officially here!! Get your copy at https://a.co/d/6UMxwsV What an incredible experience this has been working along side so many talented writers sharing their rare disease stories. 🫶 Thank you to everyone who donated to
Get ready! It’s almost time! Huge thanks to Global Genes PTEN UK & Ireland Patient Group Erin Paterson Be Do Have Movement Apex Social Group #PositivelyRareBook #RareDiseaseAwareness #rarediseasebooklaunch #careaboutrare #rarediseasetruth
Happy November! The Positively Rare book with my story in it is launching THIS month on the 20th! I’m excited to share my story following the beginning of my medical PTSD with rare disease and my mental health healing journey in this incred
#rarediseaseawareness across platforms
every network with a public tag surfaceFollow #rarediseaseawareness straight to each platform’s own tag page. Where a platform publishes open data we measure it above; the rest lock their numbers behind paid APIs, so we link rather than guess.
Every number above is measured from a named public API at the shown fetch time. Nothing is estimated or extrapolated. Platforms that lock their data behind paid APIs are not shown. Agents: the same numbers, as JSON, at /api/hashtags/rarediseaseawareness